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« The end | Main | Why We Support St. Jude's »
Thursday
Oct262006

Life in the Hospital

(This is the second installment in a three-part series. You may wish to scroll down one entry to "Why We Support St. Jude's" to read the first part.)

We were in the process of being discharged from the hospital the next day when the nurse took our son’s temperature one more time for his chart, and he was running a fever. His discharge was cancelled, and he was returned to the stainless steel crib. We were left waiting for answers.

For the next week or so, he endured a battery of tests to try and locate the source of the infection causing his fever. His ears, nose, and throat were repeatedly checked, his lungs and heart listened to, his body x-rayed. He had blood draw after blood draw after blood draw, including several in the middle of the night. E and I felt ourselves dying inside each time we faced the trauma of another visit from the phlebotomist. We never got to sleep, and neither did our son. His fever raged on. He stopped nursing, and my stress reached new heights as my patience reached a new low.

When an intern examining my son's abdomen said to another intern that "God, this kid was a screamer," I looked him straight in the face and told him that if five strangers came and pinned him down, pulled off his trousers, pressed on a surgical site, and manhandled his testicles, I’d imagine he’d make a little noise, no? I was pissed. Pissed enough to ream him out in front of the head of surgery. I wanted him and the other "not-quite-doctors" to get the message how STUPID and insensitive his comment was. 

And while all this was happening in our sad little corner of the hospital, there were far more wrenching stories unfolding around me. Walking the floor, I could see the children that should have had hair but didn’t, the mothers with frozen expressions of grief, the kids walking with their IV poles, the sunken-eyed ones who couldn’t get out of bed, and the unending background noise of crying babies and toddlers.

In the morning I could tell when the doctors started making their rounds before dawn because the sound of crying children would start on one end of the hall and methodically increase as they went from room to room. I heard a little one screaming “Mama! Mama! Mama!” but Mama wasn't there to answer the call.

 The hospital, located in an urban area, attracted patients from every socio-economic group. Often, there was only one parent involved in the child’s life. Often, their jobs and circumstances didn’t allow them to spend hours at the hospital with their child. And often, dare I say it, the parents didn’t give a damn. They viewed a hospitalized child as one in Medicaid-funded daycare. One family dropped their child off for surgery and LEFT for the day. Oh yeah, why miss a chance to go out to eat and hangout at the mall.

Remember the baby crying in the room next door? Its mother finally showed up on the weekend, with several other children in tow. When her child started crying, the woman screamed at it, “Shut up! Shut up! Will you just shut up?” A sick baby, alone all week, being yelled at during its only visit from its mother. I felt bile rise in my throat. Life in the hospital was truly hell.

(To be continued...)

October 26, 2006

Copyright 2006 Veronica McCabe Deschambault. All rights reserved. www.v-grrrl.com

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Reader Comments (10)

Oh my God. Our experience was so very different from this. This sounds like my worst nightmare. I'm both anxious and frightened to read the last installment.
October 26, 2006 | Unregistered CommenterAnnie
You just described Hell.
October 26, 2006 | Unregistered Commentermamalujo1
i.m listening,....and still sending you some strength to finish..it's hard to tell these stories..but it can be theraputic in a way...
October 26, 2006 | Unregistered CommenterWendy
What an absolute nightmare!

Reading your story makes me want to go and volunteer at this hospitals & others like it just so I can hug and hold these children and make them see that there ARE people who care and love them.
October 26, 2006 | Unregistered CommenterJavacurls
It was hard to go back to this time. I cried but I was also encouraged by how the experience had shaped my life in the past 10 years. I was amazed how many details flooded back to me as I started writing and how much I had to say.

I had my son, who is now 11, read the whole story. I was thinking he might be moved by it or full of questions. Instead he was curiously dispassionate about it...
October 26, 2006 | Unregistered CommenterV-Grrrl
Gah! I can hardly read this! It makes me so sad to think about sick babies and parents who are not there for them...Yelling at them... :(

:)
October 26, 2006 | Unregistered Commenteramber
V-I can really identify with your story. Our son was in the hospital twice for a week at a time within a month at the age of one. In fact, he spent his first birthday in the hospital. The first visit he was dehydrated due to the Rota virus. The second visit he was suffering from febrile seizures. So our experience was not as traumatic as yours in the sense that he did not have surgery, but it's a time we'll never forget. Those stainless steel cribs are so much like animal cages, it's just difficult to have your child in one. Any time we could have him out and hold him we did. I stayed with him the whole time except to come home for about an hour each day and shower, while a grandmother took over. Leaving him alone would have been such a criminal offense in my eyes, so I can't imagine the parents who could just leave their children like you described. There were many caring folks we enountered there and we treasured them, but there were others like that young doctor you confronted, who really didn't care how much they hurt a small child. Thankfully, they were in and out and moved on quickly. Our son (now 18) of course has no memory of the event, but has seen the pictures (we had to record his first birthday after all and he did have a good time because he was on the downhill side of his illness, but to look at those pictures of him so pale in one of those little hospital gowns wearing a diaper and fur slippers still melts my heart). I would say that he just kind of considers it routine stuff and really couldn't relate to what the experience was like for us, very similar to your son's reaction perhaps ... probably a good thing all in all. It is amazing how such events in our histories can change us. I know we always look as the caring hospital workers as gifts and treat them accordingly with sincere appreciation. Hugs to you as you relive those feelings all over again.
October 26, 2006 | Unregistered CommenterShirley
I could barely make it through that installment. Having just come home from our second NICU stay in our family. I just couldn't get my head around doing anything else BUT staying by their cribsides day and night. If the head dr. hadn't pulled me aside and basically forced me to go home with Conner, I probably wouldn't have.

I can't even bare to think about the poor babies who cry out for their mom's and their mom's aren't there. Excuse my language but FUCK THAT. Especially the mom who was yelling. Immediatly sterilize her and give her kids to someone who will love them and be there with them.
October 26, 2006 | Unregistered CommenterCeece
I wrote a little something about this for my blog post today and linked you. It's a matter that weighs heavily on my heart and has for a long time. Thanks for reminding me.
October 27, 2006 | Unregistered CommenterLisa
I think you handled the intern appropriately.
October 27, 2006 | Unregistered CommenterDan

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