S is for Scoliosis
When I was 15, I was diagnosed with scoliosis during a sports physical. Scoliosis is an "S" shaped curvature of the spine that often develops in children as they grow. Other than vaccination appointments when we were babies, my parents belonged to a generation that didn’t take their kids to the doctor unless they were sick—and you had to be really sick. At 15, I hadn't been to a doctor at all in at least five years and have no recollection of ever getting a physical as a kid.
By the time I was sent to an orthopedist at the University of Virginia medical college for evaluation, the curvature of my spine was noticeable to the casual observer and just shy of the range where surgery is often recommended. Surgery that was not without significant risks. Surgery that would have involved inserting steel rods into my back and fusing my vertebrae. Surgery that at that time would have kept me flat on my back in a body cast for at least six months recovering.
If only I had been diagnosed sooner. If only my parents had taken me for yearly physicals or been more aware. If only the rural school I attended had had a nurse and done scoliosis screenings. If only my PE teacher had noticed my hips dipping to one side, my uneven shoulder blades, the way my left ankle and knee pronated in. As an adolescent I was more concerned about the size of my nose and my chest to consider the shape of my spine. Still, it shocks me that my body was dramatically off balance and no one noticed until it was too late for therapy, too late for bracing, too late to do anything but watch and see if it got worse.
The back pain started when I was in college. Sitting to type was a particular torture and caused my initial bouts of back pain. I’d been a competitive runner in high school, and in college I continued to crank out a few miles a day, took PE classes, occasionally went swimming in the college pool and later took aerobics classes. I was reasonably fit and very active, but it didn’t matter.
One day when I was 26, I woke up and couldn’t turn my head. My spine was in a painful “lockdown” and I had extremely limited range of motion. I was 66 miles away from home. My husband was traveling. I managed to get into the car, and I drove (without being able to turn my head!) to a chiropractor’s office in my hometown.
I didn’t know what else to do. I‘d been seeing orthopedists for 11 years and basically they said what was done was done. I should stay fit. I should watch my calcium intake. If it got really bad, I could have surgery to straighten my spine but there was no guarantee surgery would end my back pain.
When I started chiropractic treatments, I had a very limited range of motion, the way my weight was distributed between my two legs was dramatically uneven. My left hand, which is my dominant hand, was inexplicably weaker than my right. The middle fingers on that hand would occasionally go numb. I was in so much pain I could barely carry a magazine across campus, let alone my textbooks.
During that first major episode of back pain, the chiropractor recommended a nutrition regimen that included B vitamins to boost neurological function and reduce inflammation, adjusted my back three days a week, used electrical stimulation to reduce muscle spasms, and applied moist heat. He also gave me exercises to do at home.
I’ve continued chiropractic treatments now for almost 18 years in an attempt to keep my spine flexible and moving, my back as balanced as it can be in its awkward S shape. I think chiropractic has minimized major episodes and kept me functioning but back pain remains a part of my daily life.
I had to give up running, which I really enjoyed, by the time I was 30 and stick with low impact aerobics or activities. While core strengthening exercises are critical for me, I find them very difficult to do because of the condition of my back. I am forever caught in a cycle where the very thing that might help my back (weight training, pilates) is also a trigger for more back pain and spasms that make me unable to do ANY exercise. I walk for 45 minutes several days a week, I do some yoga, but I know I don’t do enough.
Long car rides are a challenge. My chiropractor tells me to avoid sitting for more than an hour at a time. My back tells me the same thing. Very few chairs are comfortable for me. I can’t sit on bleachers, sit at picnic tables, or even sit comfortably in a restaurant or kitchen chair for more than 45 minutes of so. The only chairs I like are my recliners.
If I get chlled, my back locks up. I have more sweaters, scarves, and outerwear than anyone you know. I travel with ibuprofen in my pocket and an instant heat wrap in my suitcase. The worst thing for me is to be standing still in cold or damp weather. If I’m walking, I’m usually OK, but to watch an athletic event, parade, or even stand around a playground while the kids play is uncomfortable at best, painful at worst.
I don’t go swimming anymore because what feels brisk and refreshing to someone else is paralyzing for me. I don’t go camping with my family because I can’t sleep on the ground or risk being out in damp air for hours on end. For the most part, I can’t carry anything for more than an hour or so without discomfort or pain—it doesn’t matter if it’s a backpack, a small purse, or even a camera. This is a literal and figurative pain in the neck when you’re shopping or trying to be a tourist. Every time we plan a weekend or vacation, I'm wondering if my back can take the trip, the sightseeing, the mattress, the weather.
I normally spend at least a $120 a month on back care. Some months the figure is over $200.
I don’t mean to whine. All things considered, I’m pretty lucky. Major episodes of back pain are rare, and with minor adjustments and a few ibuprofen, I can do nearly everything I need to do. But a day doesn’t go by without back pain, however mild, punctuating my hours and limiting my activities in one way or another. I don’t expect it to do anything but get worse as I get older. I live in fear of debilitating arthritis in my spine.
So take care of your back and keep an eye on your children’s. Make sure they get yearly physicals and that the physical includes a scoliosis screening. While things could be much worse for me, they could also be much better. Scoliosis is preventable and treatable--when it’s caught in time.
Copyright 2006 Veronica McCabe Deschambault. All rights reserved.
April 3, 2006